Tuesday, August 11, 2009

The Chattanooga Aquarium

We made it up to Chattanooga to go to the Aquarium one day while we were in Mentone. We opted for the quick tour as Britton, who was on steroids for his allergies the whole vacation, was a little bit more ... erm ... difficult than his norm. The pictures won't show the meltdowns he had ... like when he screamed his head off through the entire butterfly exhibit. Which, speaking of, why do they have a butterfly exhibit at an Aquarium anyway? Britton wasn't a fan.

He did, however, love getting to pet the baby sharks and stingrays. Maybe his undoing was that, this, his favorite thing was at the very beginning. Everything was downhill after this.



Wait for it, wait for it...


There it goes. He loved seeing them swim by.


Enamored by the little yellow fish.


He did not want to leave the stingray tank and being one with the big kids.








He was too busy staring at the kid next to him to notice the SHARK.


A ginormous spider crab.

Monday, August 10, 2009

Makes My Monday

I am going to try (for the first time) a regular blog feature ...


This little gap-toothed smile definitely Makes My Monday!

Sunday, August 9, 2009

Mini-Vacay in Mentone

When we found out our friend, Afshin Ziafat, was speaking in Chattanooga last weekend, we booked some time with him and his wife, Meredith, at our friends' mountain house on Signal Mountain in Mentone. It was as charming and beautiful as everyone told us it would be! And we had some great couple time with Afshin & Meredith -- mostly sitting on the back deck watching the sunsets and playing our fair share of gin rummy and Cranium's Whoonu (so fun!).


Danny & Sheen. Friends since college ... 19 years.


Meredith and me on the back deck.


Meredith and the monkey.


The cabin we stayed in belongs to a sweet family in our church who were generous to share it with us.


One of the sunsets we saw from the deck. The little white building is actually the church where Danny stood before the floor of Presbytery to be questioned and approved for ordination (of all places a tiny church in Mentone). Britton was still in the NICU back then!


We can never get a decent family pic anymore!


Britton loved Sheen.


Sheen & Meredith.


Somehow, Britton conned Sheen into giving him his iPhone (or maybe he just took it). Britton loves iPhones.


The crow's nest on the back deck.



This trip was actually our second annual summer gathering. We met up last summer when Sheen was speaking at a camp in Chattanooga. Here we were a year ago:

Saturday, August 8, 2009

The Whisper.

This was taken at least a month ago when Britton first learned to "whisper"!

Thursday, August 6, 2009

Another Neuro Visit.

Britton had another wonderful check up with his neurologist last month. We have known that Britton is doing great, but it is always nice to get confirmation from an expert. To be honest, we always love taking him in to see this doc, so that he can see how unbelievably awesome Britton is doing!

He was glad to see Britton walking around like a pro, talking, following directions, making eye contact and playing games with him, and even figuring out how to unsnap the doc's Blackberry from his belt clip. Britton even climbed into a cabinet, shut the door on himself and played peek-a-boo with the doctor. He is a funny kid. The doc's response was ... "well, autism is definitely out of the question."

We (again) discussed Britton's smaller head size, as this has been one of our nagging concerns since he was born. Britton is a smaller guy -- all of his measurements are typically under the 25%, but his head is a little off-the-charts small. He doesn't look like he has a small head as he is quite proportional, but he does. Thankfully, Britton is following the growth curve, but is just making his own curve. I finally asked the big question ... "is Britton's small head size related to his birth?" The doctor said he felt sure that if Britton had a smaller head size because of his birth injury then he would have obvious and significant developmental delays. Since Britton is doing so well developmentally, the doc's best guess is that Britton's head size is familial. That makes a lot of sense as Danny has a smaller head size (we wear the same hat size). We were relieved to hear him finally say this, and I am hoping we can put the head size question to rest from now on!

We also talked about doing another MRI. Britton had 3 MRIs while he was still in the NICU, but hasn't had one since. We have always leaned toward not doing another one as Britton would have to be anesthesized for it and, frankly, there is no medical reason for him to have another MRI (again, Britton is doing great with no developmental deficits). It would be more "intellectual curiosity" as the doc says. In other words, it's not very often that a newborn goes through what Britton did (9+ minutes of no heartbeat/no blood circulation/no oxygen to the brain) and come out with a normal, well-functioning, undamaged brain. I can understand that he really wants to see what Britton's brain looks like 18 months past all the trauma, but not sure it is worth even the little risk that anesthesia poses. Our doc did say that he thought another MRI would show Britton's brain to be normal and well developed. That best guess will probably be good enough for us.

We will see the neurologist again after Britton turns two so he can see how Britton is doing on speech and language acquisition, and then we will probably just see him every year around Britton's birthday.

Danny and I had quite the reality check when we were in the waiting room with a number of severely brain-injured kids. As Britton ran around, laughing and playing on the jungle gym in the waiting room, other precious children were in wheelchairs, incommunicable and immobile. We realized, maybe for the first time, what exactly we were so close to, and it brought us to tears. We trust that had God chosen us to walk the difficult path of caring for a brain-injured child, He would have certainly given us grace to do so. But we are just so unbelievably grateful that God had a different plan for Britton.

And on that note, my precious, wet but clean, towel-wrapped little boy is coming in fresh off a bath to give me a goodnight kiss. Wouldn't trade these moments for anything ...

Sunday, August 2, 2009

Britton's Words

Updated:
I forgot to include ...
Bubbles "buhbuh" -- he loves bubbles
And a week ago, he put two words together for the first time ...
"Daddy, Hey!" he yelled as he ran after Danny frantically waving his hand. So cute.

Here is a list of words Britton is saying these days:
Daddy
Mama

Hey

Duck "guck"
Dog "aga or daga"
Gorilla "gor" -- He knows this word b/c of the book "Goodnight Gorilla"
Please "digga digga" Don't ask -- it's just how he prefers to say it!
Hot
Jack
(as in Jack's Big Music Show)
Done

Yes

Bye
Cracker
Roar (like a lion)

There might be more, but that is all I could think of. Language acquisition has been a slow process around here, but a fun one too! When Britton was 12-13 months old, he had one word "dada" (though "dog" soon followed) and didn't understand anything (I don't think) except his name and the word "no." Today, he can understand nearly everything I say, follow instructions (when he wants to), and is starting to say more and more words. We are assured that there is a very wide range of normal for speech acquisition and we have seen that first-hand, too, with Britton's peers. It is fun to see him picking up words -- seeing what interests him enough to start calling it a name. Can't wait for more words to come. Such a fun time!

Saturday, August 1, 2009

Allergies. No doubt.

Here is Britton the morning after our ER trip:



It wasn't a fluke when he tested positive for food allergies the other week! Now we know what can happen if we are not very careful. This reaction, we think, was from accidentally eating soy. It started when he woke up yesterday. Then it got worse, then better, then worse, then better, then worse, and so on. They said it could go on for two weeks, though he is now on a course of steroids to help fight it. Scary day.